I have a rare form of muscular dystrophy. The more I use my muscles, the weaker they get. Some of the basics:
I can’t smile. If you smile at me and I don’t smile back, trust that I’m smiling with my heart.
I’m hard of hearing. I rely on lip reading and closed captions.
I have an accent of sorts. Ironically, even though I read lips, my lips don’t move when I talk. It may take you some time to understand my speech.
I’ve been using a power wheelchair full-time since I was a teenager. People tend to stand to my side when they talk to me, but it’s tough for me to turn my body to face them. You can face me directly, don’t worry. If you’re worried about being run over, I’m actually less likely to run you over if you’re where I can see you.
Not every disabled person likes to be asked about their disabilities, but if you meet me, you’re welcome to ask me questions. I’m Disabled and proud, and I want us all to include disability in more conversations. If you want to learn more about disability, check out the resources I’ve put together at cripcorps.com.
Image description: A Chinese American woman in a manual traveling wheelchair poses in a beam of light within a cathedral. She wears a cream cardigan and red skirt.